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Early onset dementia & What is it and how can the NDIS help?
Introduction
Dementia is most commonly associated with advancing age. The incidence of dementia increases exponentially between the ages of 65 and 90 years and doubles approximately every 5 years. This doesn’t mean that dementia only occurs in older people.
People in their 40s and 50s, and occasionally even in their 30s, can also be diagnosed with dementia. When this occurs it is known as early onset or younger onset dementia. In 2019, approximately 27,247 Australians were living with early onset dementia.
While there are many different causes of early onset dementia, Alzheimer’s Disease is the most common form. According to Alzheimer’s Australia, “In Australia, approximately 25,938 people are living with younger onset dementia (under 65 years of age) and by 2056, it is projected to increase to 42,252 people.”
What are the symptoms?
The symptoms of dementia are the same no matter what age it occurs. These can include confusion, memory loss that interferes with daily life (such as forgetting important dates or events and asking the same questions repeatedly), difficulty performing familiar tasks (such as driving to the shops or writing a list), withdrawing from friends and family, losing the ability to think clearly or make judgments, language problems (such as calling a familiar object the wrong name), and changes in behavior, such as becoming easily upset, anxious, confused, or depressed.
Recognizing the signs and symptoms of dementia, getting a diagnosis, and receiving support as early as possible can greatly improve the quality of life for individuals with early onset dementia. It is important to note that many conditions can produce similar symptoms, so it’s crucial to undergo a thorough assessment by a general practitioner (GP) or specialist.
Care is required
As dementia is commonly recognized as an ‘old person’s’ disease, a diagnosis of early onset dementia can often come as a shock to both the sufferer and their family. Adjusting to the diagnosis and the challenges that come with it can be overwhelming. After diagnosis, a person with early onset dementia will require a great deal of support and sensitive care to adapt to their new situation. This will be crucial in how they adapt and adjust to their circumstances.
NDIS and early onset dementia
With the challenges and difficulties that a participant with early onset dementia will face, the National Disability Insurance Scheme (NDIS) can provide access to supports to help them live well and stay healthy. The NDIS is a scheme introduced in Australia that aims to assist individuals with disabilities in achieving their goals, enhancing their independence, and improving their overall well-being.
The NDIS can provide funding for a wide range of supports and services for individuals with early onset dementia. These supports are personalized and tailored to the specific needs of each participant, promoting a person-centered approach to care. Some of the supports that the NDIS can fund include assistance with everyday tasks such as showering, dressing, cooking, cleaning, and medication management. These supports aim to enable individuals with early onset dementia to maintain their independence and carry out daily activities with ease.
Home modifications and assistive technology can also be funded by the NDIS to create a safe and supportive environment for participants with early onset dementia. These modifications may include installing grab rails, ramps, or automated lighting systems, making it easier for individuals to navigate their homes and maintain a structured routine.
Furthermore, the NDIS recognizes the importance of social activities and community support for someone with early onset dementia. Social engagement plays a vital role in promoting mental stimulation, emotional well-being, and a sense of belonging. The NDIS can provide funding to help participants stay involved in their communities. This may include services such as transportation assistance to attend social events or group activities, as well as support to participate in hobbies or interests.
In addition to daily tasks and social engagement, a participant with early onset dementia will also require assistance to keep physically healthy. The NDIS can assist with funding services such as physiotherapy, speech pathology, occupational therapy, and dietary support. These services aim to maintain physical functionality, improve communication skills, and support a healthy lifestyle.
The NDIS operates on the principle of individualized support, ensuring that the needs and goals of each participant are met in a way that suits their preferences and circumstances. Through its funding of various supports and services, the NDIS aims to empower individuals with early onset dementia to live fulfilling lives, maintain their independence, and enhance their overall well-being.
Conclusion
Early onset dementia presents unique challenges for individuals and their families. Recognizing the signs and symptoms early on, seeking a diagnosis, and accessing appropriate support are crucial steps towards managing the condition effectively.
The NDIS plays a significant role in assisting individuals with early onset dementia by providing tailored supports and services that promote independence, well-being, and community engagement. Through its funding of daily tasks, home modifications, social activities, and healthcare services, the NDIS helps individuals with early onset dementia live fulfilling lives and maintain their overall health and quality of life.
